Mark and Darrile Papier hold and comfort their son Dillon early in the morning before he is scheduled to have brain surgery as part of a clinical trial at the National Institutes of Health in Bethesda, MD on Tuesday, February 12, 2013. At age 3, Dillon was diagnosed with Niemann-Pick Type C, a rare disease for which the scientists at the NIH hoped to find effective treatment by placing an Ommaya reservoir into his brain to allow for direct delivery of the experimental drug Cyclodextrin. The trial was put on hold after some patients developed meningitis.
CREDIT: Melissa Golden for The Wall Street Journal
Niemann Pick-C